SPARKLE

Links

CdLS-USA Foundation Outreach

Reaching out, providing help, giving hope.

CHARGE Syndrome Foundation, Inc.

A foundation that provides support to individuals with CHARGE syndrome and their families.

Deafblind Guide Dogs Listserv

A Yahoo groups for deafblind guide dog users or those interested in how deafblind people use guide dogs.

Genetic Alliance

Advocacy, Education, and Empowerment.

Mosaic Down Syndrome on the Web

Information, articles, and contacts for MDS.

National Congenital CMV Disease Registry

A research program working to learn more about children born with symptoms of congenital CMV disease.

NORD

National Organization for Rare Disorders, Inc.

Refsum Listserv

A Yahoo group that discusses Refsum Syndrome.

Articles

Points to Consider About Etiologies

A Fact Sheet produced by the California Deaf-Blind Services.